*PYRUKYND is not yet FDA-approved for patients living with thalassemia.
With real nurses as your guides in the myAgios program, you can get one-on-one disease education, financial support, and helpful resources. The myAgios team is your ally in your condition.
Learn more about thalassemia or PK deficiency
Connect with your Clinical Nurse Educator.
Help with financial and prescription questions
Connect with your Patient Support Manager for prescription assistance.
Meet others with thalassemia or PK deficiency
Get social with your community.
Meet with your CNE either in person or virtually to find compassionate support that will help you to identify your goals and help you to thrive
Find assistance with doctor discussions, information about your disease, and explanation of the latest research
Build connections through webinars, community events, advocacy groups, and others like you
Clinical Nurse Educators do not provide medical advice. For medical advice or treatment-related questions, please talk to your healthcare team.
If you want to discuss your condition but don't know where to begin, start with your CNE. They can provide information, educational resources, and emotional support as they move forward with you. Call 1‑877‑77‑AGIOS to speak to someone, or use the CNE Locator below.
Find your CNEFilling and getting your PYRUKYND prescription
Clearing up any insurance confusion
Speaking and working with your healthcare provider
Helping you set treatment goals
Connecting you to events and a wider community
Patient Support Managers do not provide medical advice. For medical advice or treatment-related questions, please talk to your healthcare team.
Get clear, simple answers to your insurance questions. Download the guide.
Make sure you’re getting the full support you deserve by connecting to a myAgios Patient Support Manager.
Your community is important to you. So, it's important to us. Your CNEs and PSMs can connect you to events and to others with similar conditions.
Check out eventsThe most common side effects of PYRUKYND were decrease in reproductive hormone (estrone) in men, increased salt from uric acid (urate) blood test, back pain, decrease in reproductive hormone (estradiol) in men, and joint pain (arthralgia).
These are not all the possible side effects of PYRUKYND. Call your healthcare provider for medical advice about side effects. You may report side effects to the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch.
Tell your healthcare provider about all the medicines that you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. PYRUKYND and certain other medicines may affect each other causing side effects. PYRUKYND may affect the way other medicines work, and other medicines may affect how PYRUKYND works. Know the medicines you take. Keep a list of them to show your healthcare provider or pharmacist when you get a new medicine.
Please see full Prescribing Information, including Patient Information.
PYRUKYND is a prescription medicine used to treat low red blood cell counts caused by the early breakdown of red blood cells (hemolytic anemia) in adults with pyruvate kinase (PK) deficiency.
It is not known if PYRUKYND is safe and effective in children.