Welcome to myAgios® Patient Support Services, helping you to navigate the path ahead

A support program for patients living with thalassemia or pyruvate kinase (PK) deficiency, and who have been prescribed PYRUKYND.*

*PYRUKYND is not yet FDA-approved for patients living with thalassemia.

How do I get started with myAgios?

With real nurses as your guides in the myAgios program, you can get one-on-one disease education, financial support, and helpful resources. The myAgios team is your ally in your condition.

Learn more about thalassemia or PK deficiency

Connect with your Clinical Nurse Educator.

Help with financial and prescription questions

Connect with your Patient Support Manager for prescription assistance.

Meet others with thalassemia or PK deficiency

Get social with your community.

Clinical Nurse Educators

Your Clinical Nurse Educator (CNE) is here to help you navigate your condition.

Your CNE can help with:

Individualized Support

Meet with your CNE either in person or virtually to find compassionate support that will help you to identify your goals and help you to thrive

Educational Resources

Find assistance with doctor discussions, information about your disease, and explanation of the latest research

Community Connections

Build connections through webinars, community events, advocacy groups, and others like you

Clinical Nurse Educators do not provide medical advice. For medical advice or treatment-related questions, please talk to your healthcare team.

One-on-one Disease Education

If you want to discuss your condition but don't know where to begin, start with your CNE. They can provide information, educational resources, and emotional support as they move forward with you. Call 1‑877‑77‑AGIOS to speak to someone, or use the CNE Locator below.

Find your CNE

Patient Support Managers

Your Patient Support Manager (PSM) is your guide in helping you fill and get your prescription, qualify for financial assistance, get personalized support, and more.

Your PSM can help with:

Filling and getting your PYRUKYND prescription

Clearing up any insurance confusion

Speaking and working with your healthcare provider

Helping you set treatment goals

Connecting you to events and a wider community

Patient Support Managers do not provide medical advice. For medical advice or treatment-related questions, please talk to your healthcare team.

Check out our Insurance 101 Guide

Get clear, simple answers to your insurance questions. Download the guide.

Already prescribed PYRUKYND?

Make sure you’re getting the full support you deserve by connecting to a myAgios Patient Support Manager.

Find your PSMGetting PYRUKYND

Community connections and events

Your community is important to you. So, it's important to us. Your CNEs and PSMs can connect you to events and to others with similar conditions.

Check out events

Important Safety
Information

Indication

PYRUKYND may cause serious side effects, including:

  • Rapid breakdown of red blood cells (acute hemolysis) has happened after suddenly interrupting or stopping treatment with PYRUKYND. You should not suddenly stop taking PYRUKYND. If you have to stop your treatment with PYRUKYND, your healthcare provider should monitor you closely. Tell your healthcare provider right away if you develop any signs or symptoms of breakdown of red blood cells including yellowing of the skin or the whites of your eyes (jaundice), dark colored urine, dizziness, confusion, feeling tired, or shortness of breath

The most common side effects of PYRUKYND were decrease in reproductive hormone (estrone) in men, increased salt from uric acid (urate) blood test, back pain, decrease in reproductive hormone (estradiol) in men, and joint pain (arthralgia).

These are not all the possible side effects of PYRUKYND. Call your healthcare provider for medical advice about side effects. You may report side effects to the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch.

Before taking PYRUKYND, tell your healthcare provider about all of your medical conditions, including if you:

  • have liver problems
  • are pregnant or plan to become pregnant. It is not known if PYRUKYND will harm your unborn baby. Tell your healthcare provider right away if you become pregnant or think that you are pregnant during treatment with PYRUKYND
  • are breastfeeding or plan to breastfeed. It is not known if PYRUKYND passes into your breast milk. Talk to your healthcare provider about the best way to feed your baby during treatment with PYRUKYND

Tell your healthcare provider about all the medicines that you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. PYRUKYND and certain other medicines may affect each other causing side effects. PYRUKYND may affect the way other medicines work, and other medicines may affect how PYRUKYND works. Know the medicines you take. Keep a list of them to show your healthcare provider or pharmacist when you get a new medicine.

Please see full Prescribing Information, including Patient Information.

INDICATION

What is PYRUKYND?

PYRUKYND is a prescription medicine used to treat low red blood cell counts caused by the early breakdown of red blood cells (hemolytic anemia) in adults with pyruvate kinase (PK) deficiency.

It is not known if PYRUKYND is safe and effective in children.